This poem could easily have been written to somebody who used to abuse me:
You may write me down in history
With your bitter, twisted lies,
You may tread me in the very dirt
But still, like dust, I’ll rise.
Does my sassiness upset you?
Why are you beset with gloom?
‘Cause I walk like I’ve got oil wells
Pumping in my living room.
Just like moons and like suns,
With the certainty of tides,
Just like hopes springing high,
Still I’ll rise.
Did you want to see me broken?
Bowed head and lowered eyes?
Shoulders falling down like teardrops.
Weakened by my soulful cries.
Does my haughtiness offend you?
Don’t you take it awful hard
‘Cause I laugh like I’ve got gold mines
Diggin’ in my own back yard.
You may shoot me with your words,
You may cut me with your eyes,
You may kill me with your hatefulness,
But still, like air, I’ll rise.
Out of the huts of history’s shame
Up from a past that’s rooted in pain
I’m a black ocean, leaping and wide,
Welling and swelling I bear in the tide.
Leaving behind nights of terror and fear
Into a daybreak that’s wondrously clear
Bringing the gifts that my ancestors gave,
I am the dream and the hope of the slave.
The original is by Toni in the comments on this page at GoodTherapy.org
Well today was meant to have been my first autism assessment appointment, but they cancelled at the last minute – again. The last cancellation was because they sent me the wrong appointment dates. This time it’s because the Advanced Practice Nurse at the Autism Service is sick without anybody to cover for him. The last time this happened the waiting list was delayed for 3 months and I got knocked off the waiting list because they mislaid my file.
The annoying thing is that as far as my family, support worker, the Advanced Practice Nurse at the Autism Service and the Psychiatrist who made the referral are concerned the result is a foregone conclusion, but I have to be formally diagnosed to access the support I need to live independently. I can’t access any talking therapies for my mental health issues until we have the result. Basically the only treatment I can have is antidepressants, but I’ve yet to find an antidepressant that actually does anything more than keep me from killing myself. I’m stuck on welfare and I’m lucky if I can handle a 2 mile bus journey most days. I want to get better – this isn’t a life, it’s an existence. My life is on hold. 16 months from referral and still waiting.
I can’t add much more to this. What she says is pretty much what I’ve been feeling for nearly 40 years.
Well, the Autism pre-assessment has happened. Mr S (Advanced Practice Nurse) took down some of my history and symptoms and then talked about the assessment procedure with my mother and me. Thankfully the Crisis Team Psychiatrist who referred me had taken a very comprehensive history and symptoms, so there wasn’t much more history that needed to be taken down. At various points in the history where I had been in contact with child psychiatry, educational psychology or mental health services, he asked if Autism had ever been mentioned. “No” each time. He seemed increasingly bemused, as if they had repeatedly missed the blatantly obvious. Things that never used to make sense about my childhood now make sense. I had a feeling that I was backward compared to my own age group in communication, manual dexterity, co-ordination and social skills. My grades in English, Art, Music and PE bore that out. It turns out that the Ed Psychs’ reports reinforced that. I was ahead of my age academically in the other subjects. My IQ was above average academically, but in all other areas I was effectively learning-disabled. No wonder there were disagreements over admitting me to secondary school early. The average 11 year old finds the transition to a much bigger school daunting, so I can see why the local state secondary school would have been reluctant to admit a socially backward 9 year old. Hence why I was eventually sent to a small all-age private school for a while to smooth the transition. It seems that the Ed Psychs weren’t too worried about my social backwardness – they figured that I was intelligent enough to compensate for it or even catch up eventually. Clearly that hadn’t happened otherwise I wouldn’t be seeing Mr S or, indeed, posting this monologue.
The assessment process involves three questionnaires, one of which relates mainly to behaviour between ages 4 and 11 and so is to be completed by the parents. The questionnaires are completed over the course of 3 weekly appointments. They are a lot like questionnaires available online, but examples have to be given to support the answers to each question. Once completed, the questionnaires together with case notes are given to a panel who determine whether the client is or isn’t on the Autism spectrum. A more detailed diagnosis as to position on the spectrum would usually not be done on the NHS, but that shouldn’t be a problem as DSM-V only talks about ASD rather than breaking it down further into Asperger’s, HFA and so on. The diagnosis of ASD and accompanying medical evidence should be enough to prove care and support needs.
One questionnaire has 50 questions which scores specifically for Autism spectrum traits. I recognised it instantly as being one that I have done before online a few times and scored consistently in the high 40s. The name of the questionnaire escapes me.
The other questionnaire is an Empathy Quotient questionnaire of 60 questions. It was much harder for me to figure out what they were trying to assess. I’m aware of the fact that my empathy is stunted in areas that NTs have no problem with. And from my reading about Autism vs Narcissistic Spectrum Personality Disorders, Autism usually involves deficiencies in different sorts of empathy to the deficiencies experienced by Narcissists. According to this article, the EQ doesn’t pick out which areas are deficient, it simply calculates an overall score. The lower the score the higher the probability of ASD / Narcissistic Spectrum PD.
I think we can easily rule out Narcissism Spectrum. Narcissists know when they’re hurting people or manipulating them and don’t feel much remorse if any. When I know I’ve hurt people I always feel remorse. Usually I don’t realise until somebody tells me that I’ve hurt their feelings and what it was that I said or did. Usually I’m surprised that they are upset about it (usually it’s something that wouldn’t bother me if they did it to me), but I’m still remorseful for the upset caused. I usually then remember it as something that NTs get bothered by and try not to do it again. It’s a bit like living in a foreign culture (e.g. sniffing is ruder than blowing your nose in the UK, but in Japan blowing your nose is ruder than sniffing because the loud noise draws attention to you)
All in all, the process seems very forensic and thorough. A lot like what I’ve read about the process of diagnosing personality disorders. Perhaps not surprising given that both diagnoses involve assessing pervasive impairments in social functioning across most of the client’s lifetime. Indeed, Autism was originally classified as a type of personality disorder, but was reclassified when it became clear that autistic behaviours appear much earlier on in child development than behaviours typical of personality disorders. Advances in neurology have also made it clear that autism is invariably linked to neurological variations and that nurture rarely has much effect on the outcome. PDs on the other hand either have no neurological underpinning (only early psychological trauma), or neurological differences give a propensity for a PD which is then sometimes (but not always) triggered by early psychological trauma. This is why PDs show up later in child development than autism.
If Mr S’ instincts are right, then I am indeed Autistic, something I’ve suspected for over a decade. Odd how I’m only now starting to see the down sides of the diagnosis, though. I guess I always used to be able to say to myself that I could well have been wrong about my suspicions, but wanted to be right. Now it seems that I could well have been right, but I’m not sure I will be glad about it. When my problems seemed to be anxiety, depression and being a bit of a klutz, there was always a sense that I would completely recover eventually. Now it’s looking like a long hard slog to learn enough social and emotional skills to try and get by in a world that I’ll never truly easily understand and will always scare the cr*p out of me. Daunting…
Since I’m due to be assessed for Autism shortly I’ve been obsessing a fair bit about how different people think and make decisions.
I’ve known people who are gifted at thinking strategically/creatively (and I envy them), but very slow to get to the details. Myself, I’m detail oriented – I get deep down into the details of an option and work in the details and then work back to the level of the original options and head for the details in the next of the original options which makes me very poor at making strategic decisions quickly. In short – I’m good at computer programming but dreadful at chess.
Why the difference? That’s where trees come in. Decision making can be represented by a kind of tree. Each decision is a fork in the tree. The trunk is where we start considering the main options. The details are where the leaves are. A common problem given in computer science (where data is often stored in tree-like logical structures) is to find a way of exploring as much of the tree as possible in a given amount of time. The answer depends very heavily on how branched the tree is, how many alternative paths can be explored at the same time, and whether we want more detail at the expense of fewer options.
A detail thinker may be only capable of exploring as little as one path through the tree in one go. They think very linearly most of the time and so are very efficient at it. They get to the detail of a given option more quickly than the strategic thinker, but they have to backtrack repeatedly to explore all the ramifications of the given option before eventually returning to the trunk and doing the same thing again for all the other branches off the trunk. You’ll get the detail on a particular option very quickly, but if you want a quick overview of all the options, go elsewhere.
A strategic thinker is capable of thinking laterally along several different alternative paths at the same time, which means they can explore more options at a broad, strategic level up without backtracking until they get so far into the details of the individual options that they exhaust their multitasking ability and have to resort to the more linear thinking style of the detail thinker to get any further. Being less practised in that thinking style compared to the detail thinker, they lose their edge to the detail thinker.
I’ve worked with and lived with strategic thinkers. Sometimes the clash between our thinking styles led to mutual frustration. The last thing a strategic thinker wants is a dissertation on the details of the option they were least likely to pursue. The last thing a detail thinker wants is to find that they have been on a wild goose chase analysing an option that the strategic thinker didn’t really favour in the first place. Communication is the key there, I suppose.
With good communication the differences can be complementary. Let the strategic thinker have pick out the bright ideas and let the detail thinker analyse them. There’ll still sometimes be frustrations – the strategic thinker will feel like the detail thinker is ‘always putting the brakes on’; conversely the detail thinker will often feel like the strategic thinker’s ideas are ‘half-baked.’ More positively, the detail thinker can often save a strategic thinker from making a costly mistake because unfortunately the devil is often in the detail. Likewise the strategic thinker can save a detail thinker from wasting time and money on projects that won’t get anywhere in the long run.
From this detail thinker to all the strategic thinkers I’ve ever known – “we’ve frustrated the heck out of each other, but we need each other. Vive la difference!“
Just realised it’s 20 years since I came out as transgender (it’s also some months since I last posted). To me, being called by that word in the early days after I came out meant to me that I had been accepted as a somewhat sharp-tongued member of my gender. 20 years on I’m not so sure… The evolution of the bitch.
Oh and for some light relief, here’s Elton:
I remember reading Rabbi Lionel Blue observing (which of his books I can’t remember so I will be paraphrasing) that most religions have a rite of passage for marriage. He seemed to be of the opinion that getting married was relatively easy compared to dissolving a marriage. When one gets married one usually rides on the good wishes of one’s community, and, perhaps, the psychological feelings of support from the marriage rite. One may also feel supported by the blessing of a higher power.
He observed that, if anything, people perhaps needed more support from their tradition and community at the dissolution of a marriage. When we get married we are full of love, goodwill, and hope. However the breakdown of a marriage easily unleashes the worst in us. Those going through the end of their marriage need the support of whatever belief system they hold to and their loved ones so that even if there is no hope of reconciliation, the hurt caused and the urge to hurt by and through the breakup will be less than it could have been. In short, you don’t need much goodness to get together, but you need as much as possible to break up.
Until recently I was unaware of any traditions that had ceremonies for ending a relationship. Such ceremonies do exist , but aren’t as well known as I feel they ought to be, so here are some links. This post may well be updated as I find more links to add.
- Divorce Rituals
- Ceremonies of Hope – Divorce rites in the Unitarian Universalist tradition
- An example of a Ceremony of Hope – from Beliefnet
Likewise here are some readings which may be helpful:
- The breakup of a marriage is a loss like the death of a spouse, and will often be mourned in closely parallel ways. There are some important distinctions: Divorce evokes more anger than death, and it is, of course, considerably more optional. But the sorrow and pining and yearning can be as intense. The denial and despair can be as intense. The guilt and self-reproach can be as intense. And the feeling of abandonment can be even more intense….Divorce can also strip those who have been left, of their sense of self. The completion of mourning can be harder too, for the problem of divorce is that we are both alive although the marriage is through and “the bereaved” must mourn someone who has not died. –Judith Viorst, Necessary Losses
Well it’s that time of year again when Brits pollute the atmosphere to the bemusement of most of our foreign visitors in a tradition that started with a sectarian ritual burning of an effigy of a Catholic. The neighbourhood is full of the noise of fireworks and the stench of burning wood pallets and burning tyres. Northern Ireland in a Loyalist neighbourhood on 11th July? Nope. Welcome to “Great Britain” on November the 5th – 19th century stylee.
Meantime this recovering Catholic’s room isn’t filled with the odour of the local “bonfires”, but rather the very scent of Heaven itself – incense. Basilica to be exact. A fitting name to use to start this blog dontcha think? Windows open of course to avoid setting off the smoke alarm, but believe me the aroma is worth the noise of the fireworks.